Cao Yang's self-reliance, self-made drugs and even self-developed genetic drugs are undoubtedly a great shock to Wei Kang.
He returned to the office, still unable to fully recover from the aftershocks.
Cao Yang is not just doing it for himself, he is also running for all patients with menkes syndrome, looking for a cure.
Even if Sanqing hadn't intervened halfway, Wei Kang believed that sooner or later he would overcome the difficulties and develop a genetic drug that could completely cure the disease.
This way for patients to spontaneously find a way out is actually very helpful to medical staff.
Apart from anything else, if Sanqing were to find these 61 patients on his own, it would not only be very laborious, but also take a long time.
It has to be said that patients are inherently similar. It is easy for a patient to find a group of fellow patients who have the same disease, unite and help each other, and form a rope, thus radiating great strength.
This power is also very valuable to pharmaceutical companies.
Pharmaceutical companies need a large number of clinical patients to develop new drugs. Patients with popular diseases are easy to find because there are so many.
However, for many rare diseases, the number of patients for each disease is rare, and it is very difficult to find enough clinical patients to test drugs.
Especially for rare diseases like menkes, it is estimated that there are only 61 people in the country. If pharmaceutical companies want to find them, it is like looking for a needle in a haystack.
Only a strange person like Cao Yang can bring all the patients together and save pharmaceutical companies a lot of effort.
To a certain extent, patients with rare diseases and pharmaceutical companies are also interdependent and need each other.
Patients need pharmaceutical companies.
When pharmaceutical companies develop new drugs, they also need patients.
Only by joining forces can the disease be completely overcome and therapeutic drugs developed.
As for the domestic rare disease patients, the number of each patient is not large, but when all diseases are added together, the total number of patients is very large, even more than cancer patients, with a total of 20 million.
This patient pool is very scattered, and it is difficult for pharmaceutical companies to collect it on their own. They usually contact hospitals to find relevant patients for clinical research.
This method is undoubtedly time-consuming, labor-intensive and inefficient.
Especially when the number of patients with a certain disease is particularly rare, it is even more difficult to find patients.
How can we bring together all patients and integrate them into a force to contribute to the research and development of rare diseases?
Wei Kang thought about it over and over again, a vague idea kept flashing in his mind, but he couldn't catch it.
He couldn't help but fall into deep thought.
Suddenly, he had an idea, slammed the table, and blurted out.
"To bring together 20 million patients, is there any better way besides the Internet?"
"These patients can be treated as medical big data, genetic testing can be done for each person, a personalized genetic database can be established, and then drug research and development based on genetic diseases can be carried out."
"Isn't this the legendary 'personalized medicine'?"
"I have artificial intelligence at my disposal, am I still worried that I can't control this data?"
"In any case, with the gene bank data of 20 million patients, we are already in an invincible position."
"Sanqing can then develop targeted gene therapy, and the cost will be paid jointly by patients and medical insurance. Although Sanqing also invests a lot, at least it does not have to be borne independently. This is also a basic scientific research investment, which can be regarded as an investment in future medical care."
"This is undoubtedly a win-win situation for patients and pharmaceutical companies, and there is even high commercial value to be developed."
"From genetic testing, to genetic drug development, to subsequent health care, a closed medical loop is formed. If it can be developed, there will be no shortage of buyers and a good business model can be formed."
"If this model is successful, it will attract a steady stream of patients and will inevitably create a new Internet medical model."
The more Wei Kang thought about it, the more excited he became. He turned on his computer and began to seriously think about feasible solutions.
First, we need to create an app, and temporarily let menkes patients join in, as well as SMA patients who have participated in clinical clinics before.
After patients register, they perform real-name authentication, associate their medical insurance cards, and then upload their medical records and genetic testing information.
Tanazuka
Of course, Sanqing can also upload more detailed genetic testing data.
This forms a patient's genetic database, and every time the patient sees a doctor or takes medicine, the information can be added and saved.
This undoubtedly forms a patient version of the electronic medical record. The app can explain relevant test data in detail, record medication, and can also remind patients to take medication on time every day.
Of course, all this information must be kept confidential and cloud storage services are provided.
The app can provide personal genome services based on genetic testing, and provide personalized medical care and therapy development based on personal DNA.
If there are many patients with a certain rare disease, Sanqing can develop marketable genetic drugs, and patients can apply for clinical trial quotas on the app.
If there are rare diseases, patients can contact Sanqing to develop small molecule drugs or genetic drugs for individuals through self-payment, crowdfunding or even installment.
If the technology is mature, this will not be very difficult at the research and development level.
The app will also develop a forum for each rare disease, which contains information about the disease, treatment options, and even ways to make homemade medicines.
If a patient is temporarily unable to obtain genetic medicine due to financial reasons or technical problems, he or she can obtain relevant information and pharmaceutical courses from the forum, and then make his own medicine like Cao Yang did.
The app can even provide shared laboratories for capable patients to self-study.
In short, if these 20 million patients are classified into a genetic disease classification, there is great potential for this matter.
Not only can it greatly promote Sanqing's progress in gene therapy, it can even greatly ease financial investment.
Of course, the development of this kind of business cannot be separated from the support of the state.
Moreover, if it really wants to become bigger and stronger and include patients from all over the country, Sanqing may not be able to monopolize this business and will have to introduce other capital.
Wei Kangsi thought about it and decided to go ahead.
Let’s start with gene therapy for rare diseases. As for the future, we’ll see as we go.
He started calling Anmei.
"Anmei, help me develop a mobile app for medical big data. The functions are as follows..."
"Okay," An Mei's sweet voice said, "Please name this app."
Wei Kang pondered for three seconds: "China is the country of dragons, and we are all descendants of dragons. So, our genome map should be called a dragon map."
"Long Tu, this name sounds very nice."
"The Longtu app has been completed and installed on your mobile phone. Please check it and provide your comments."
"So fast!" Wei Kang quickly turned on his phone, and sure enough, a soaring Chinese dragon icon appeared on the desktop.
Click in, register with your mobile phone, log in, and start checking out the features.
After the real-name authentication, I quickly linked the social security card, and then put in all my previous liver cancer case information, and even took photos of various test reports. Soon these information became a clear and organized form in the app. Various data.
Therefore, there is an electronic medical record of Wei Kang in the app, which can be viewed and printed. Various medical images and test reports, as well as health data, can be said to be very convenient.
Wei Kang nodded with satisfaction and clicked into the forum again. It was still blank.
He applied for two branches, one for SMA and one for menkes.
Soon, Anmei filled in some relevant information that she found, including detailed introductions to the disease, treatment plans, Sanqing's genetic medicine, and even some simple homemade medicine tutorials.
"By the way, we need to get a web version. After all, if you want to read information on the forum, the web version is more convenient."
Wei Kang suddenly remembered and asked Anmei to register a new website address. He quickly got it done and put the link in the app's forum.
"Great, let's just leave it like this for now. Let's wait until the patients use it and see if they have any comments. Then we can continue to improve it."
A few days later, the Longtu branch was established, and the app was uploaded to the Android and Fruit app stores.
Next, it’s time to look at patients’ feedback.
