Cao Yang walked out of the gate of Sanqing headquarters, the sun shone on his face, the birds were singing and the flowers were fragrant, and the world was sunny.
For the first time, he felt that the world was so beautiful.
I just felt that the sea and the sky were vast, and all the haze that had been weighing on my heart for many years suddenly disappeared without a trace.
His eyes filled with tears, his mind was agitated, and he couldn't stop shouting in his heart.
The child was finally saved!
God knows how long he had been waiting for this day!
How could we have reached this point if there was no way out.
The scene three years ago appeared before his eyes.
When my son Xiaowei was 6 months old, he was not only thin, but he could not even turn over.
At that time, he just thought that his son might be malnourished, and without thinking much about it, he discussed with his wife to go to the hospital for a check-up.
All routine examinations, blood tests, urine tests, everything that could be checked were checked, and there was no problem.
Finally, the doctor, relying on his years of medical experience, suggested that he take the child to check for genetic problems.
At the First People's Hospital of Gan Province, Xiaowei underwent examination.
At that time, it was only diagnosed as growth retardation by doctors, and it would take some time for a specific genetic test report.
The whole family fell into a long waiting process.
Half a month later, the doctor's examination results came out. My son's disease was menkes syndrome.
This is the first case confirmed by the hospital, and doctors have no idea what to do because the cause is so rare that its occurrence is more difficult than winning the lottery jackpot.
The doctor told him that there were only a few dozen case records nationwide, and there was no very detailed information database.
Even in first-tier cities, it may be difficult to treat him.
Cao Yang's heart suddenly went cold, and he was completely stunned.
He felt heartbroken when he thought about the fact that the child was still so young and had to suffer such a big crime.
But as the mainstay of the family, how could he collapse at this time?
So, he simply packed up his toiletries and hurriedly embarked on the road to seek medical treatment.
They went to many hospitals across the country, but were turned away for the same reason: they were terminally ill and there was no cure.
I even looked for folk remedies, used traditional Chinese medicine, and supplemented trace elements with Xiaowei, but there was no obvious effect.
The child has been subjected to such a torment, and his originally thin body can no longer withstand the test.
It is simply calling the sky to be unresponsive and the earth to be ineffective.
At that time, he felt so desperate for the first time.
What made him even more desperate was that before he gave up, people around him began to persuade him to let his child live the last period of his life well.
As a father, when his child is in danger, there is no way to save him. This makes him extremely sad. How can he say that he just lets it go?
He made up his mind that if no one could save the child, then he would do it himself and must save the child.
When I checked the information before, I found that Xiaowei's disease is caused by the inability of the intestines to absorb copper normally. Intravenous injection of copper histidine can be used to alleviate the deterioration of the disease.
In other words, children may be cured by supplementing copper histidine.
Since the profit margin for developing this kind of medicine in the early stage is small, no domestic pharmaceutical company is willing to do it.
He found many pharmaceutical companies, and they all said that it would take up to 2 years from early stage of research and development to launch, and cost tens of millions.
He hit a wall again. Even if he went bankrupt, he couldn't afford the tens of millions of dollars.
This was his second despair.
He is just a father who just wants to find some medicine for his child so that he can survive. Why is it so difficult to realize such a simple wish?
There is always a way, so he joined a group of patients. Some patients purchased copper histidine from abroad and gave him a share, and also told him how to purchase it.
He immediately went home and gave it to Xiaowei, and the effect was obvious, which made him very happy.
But long-term overseas procurement is not a long-term matter.
The shelf life of the medicine is only 56 days, and he will have to fly abroad once in more than a month.
Since Xiaowei fell ill, the family business has been delayed, and the cost of this trip was at least more than 20,000.
Cao Yang thought about it and decided to make his own medicine in order to save his son.
He converted a utility room into a laboratory, added instruments and equipment, and got started.
Everyone thought he was crazy. With only a high school education, it was undoubtedly a fantasy for him to make pharmaceuticals.
No one believed he could do it!
There are many doubts, many difficulties, and many dangers.
It was the first time he proposed the idea of making his own medicine to a group of patients.
Parents who share the same problem refuted it mercilessly: "You can't do it, it will be legal."
Even the wife didn’t believe it: “If it’s so simple, why is there no company willing to do it?”
Valley coax
Even the old father said: "Do you think you are a scientist? I bet you can't do it."
All his relatives advised him to give up: "You are still young, have another child, don't waste your time doing this or that."
This was his third despair.
However, this time he was used to it.
No matter what, he will not give up, even if there is only a glimmer of hope, he must hold on tightly.
Cao Yang started a race against time mode, checking domestic and foreign papers and materials.
Since his English was not good, he used a dictionary to translate word by word and learned chemical formulas.
Although my head was dizzy, thinking that this might be my son's life-saving straw, infinite strength surged out of my body in an instant, and I had to persevere no matter how difficult it was.
Developed again and again, overturned again and again. Considering the safety of the medicine, he has been considering the dosage.
I stay in the laboratory every day, day and night. Every time I can't think of a solution, I think of my son and I have the motivation to persevere.
Finally, in the second month, the potion was developed.
He excitedly bought a rabbit, injected the medicine into the rabbit, and observed it carefully for 24 hours. The rabbit was still alive and kicking.
Although the experiment was successful, he was still afraid that the human body would develop immunity and that his children would not be able to withstand the test, so he decided to try the medicine himself.
After injecting the medicine, I did not experience any discomfort.
Only then did he dare to inject his son, and he also had to keep an eye on the changes in the child's body, fearing that he would not be able to prescribe the right medicine.
After Xiaowei took the medicine, his mental state obviously began to improve.
He bit the bullet, persisted for half a month, and took his son to the hospital for examination.
The doctor told me that the test results were normal and the brain waves were restored through medication.
My son can now raise his head normally, urinates more easily than before, and his condition has not worsened.
The hanging heart was finally relieved.
The successful development of copper histidine can delay his son's life. This is only the first step to success.
He was not content with merely delaying the disease; he wanted to cure his son completely.
As a result, he began to pay attention to the national rare disease forum and traveled to various parts of the country to attend rare disease conferences to learn about gene therapy for rare diseases.
He began to study for his undergraduate degree by himself, and decided to overcome new problems, study gene editing, and improve the condition of children by cultivating stem cells.
Afterwards, he plans to go on to graduate school so that he can have a better environment and be exposed to molecular biology.
As long as there is a chance, he will not give up. He is also grateful to his son for stimulating his unlimited potential.
He is not a medicine god, but he has tried all kinds of medicines.
In the face of life and death, everyone is vulnerable.
But it seems insignificant in front of father's love.
He is like a set of barriers between the son and death, and a light in the son's life.
At this moment, the sick baby in the patient group unfortunately passed away.
Everyone also learned that Cao Yang had developed copper histidine medicine, and asked if they could help them.
But he knew that he did not have qualified research and development channels, so selling medicine in this way was illegal, and he could not prove that this medicine was suitable for all patients.
He couldn't bear such a big responsibility, so he could only politely refuse.
This caused him great pain.
Given the choice between the law and life, he would definitely choose life if he could.
At this time, he knew that only by becoming stronger could he save more people.
As a result, he began to appeal to more people on social platforms to pay attention to patients with rare diseases and give them a hope of survival. He also began to seek help from experts from all parties and tried his best to follow the formal medical application process and develop gene therapy drugs.
Disease is ruthless, but there is love in the world.
The incident of Cao Yang's homemade medicine to save his son has also attracted the attention of many people in society.
He has also been fighting unremittingly on the road to research and treatment of menkes disease.
Finally, his hard pursuit and hard work paid off.
Waiting for today.
Waiting for Sanqing to lend a helping hand and help.
All the hardships along the way passed through his heart.
Cao Yang smiled, all the efforts seemed to be worth it at this moment!
After a while, he came to his senses, took out his cell phone, and posted the good news to the patient group.
"The great news is that Sanqing has agreed to my request and our child has been saved!"
"I will soon start researching gene therapy drugs with experts from Sanqing. Brothers, please wait for my good news."
"By the way, brothers who are free can also bring their children over and participate in the treatment as soon as possible."
The patient group instantly became excited.
