Kunming City, First People's Hospital, Pediatric Clinic.
As soon as Chen Jianfeng got out of the elevator, he saw a very eye-catching sign "Please go to Clinic No. V18 for rare disease clinical trials."
He followed the direction of the arrow and came to a corridor filled with SMA patients and their families.
Some were acquaintances in the patient group, and some were unknown to each other. There was a hint of excitement in their tired expressions, and they were whispering to each other.
Chen Jianfeng greeted a few acquaintances and found an empty seat to sit down. He and his wife accompanied their children while waiting for their number to be called.
"Brother, do both of your children have this disease?" A rich middle-aged man standing next to him came over and asked curiously.
Chen Jianfeng nodded nervously: "Yes."
"Hey, what a sin, it's so pitiful. I have only one person in my family and it's already so hard, but there are two in your family, hey..." The uncle couldn't go on and wiped away a handful of bitter tears.
Chen Jianfeng asked cautiously: "Brother, do you know what are the requirements for applying for this clinical trial?"
The uncle didn't take it seriously: "What's the request? There are only a few people suffering from this disease. Now it's probably the first clinical phase, and there are at least dozens of people. We're in the first wave, so we can get in line no matter what."
He showed a hint of pride: "Fortunately, you were smart and came quickly. If I had been delayed for a few days, I might have been scheduled to the second clinical phase."
Chen Jianfeng felt confident and smiled shyly: "I live nearby, not far from here."
The number is called continuously, and family members go in one by one with their children in their arms. After the doctor reads the case, if he meets the conditions for inclusion in the experiment, he will give him a form, fill in the information and sign.
SMA is usually divided into several subtypes based on age of onset and severity, with infantile-onset SMA being the most severe and common subtype.
Most of the patients who come here are the most severe ones. Children have lost the ability to speak and walk. Without effective treatment, in the end, they will not even be able to breathe and swallow, and will eventually be killed by the disease. .
The parents who were able to arrive as soon as possible were families who were at their wits' end and desperate.
The conditions of the children who took Biogen's Nosinaxin Sodium Injection have improved, and their parents are not so anxious and will not rush over immediately.
The criteria for inclusion in clinical trials are also very simple. As long as the children are critically ill and their parents do not have the financial ability to afford imported drugs, they can apply.
The quota for the first phase was about 30 people, and it was full in one morning.
Those who arrive later can only apply for the second clinical phase.
Chen Jianfeng successfully completed the application. After seeing the condition of his two children, the doctor's eyes became full of sympathy.
Soon, 30 patients were taken away, who needed to complete some clinical examinations before receiving intravenous medication.
Chen Jianfeng was truly relieved at this moment. He paid the inspection fee and began to wait quietly.
The dark cloud that has been hanging over the whole family for a long time is finally going to dissipate.
Looking at the bright sun shining outside the window, his mood became happy.
Finally, things turned around, and I actually applied for a free clinical trial, and the two children were able to receive treatment without spending a penny.
No more cruel choices between two children.
It's so nice not to have to give up any of my children.
The 60,000 yuan that I finally saved can be used to pay off part of the debt first, and then pay back the rest slowly. If two people work together, they will earn more. I believe that all the debts can be paid off in a few years. Pay off.
When the children recover, they can go to school normally, and my own burden will be much lighter.
Thanks to Sanqing's medicine, these four years of painful travel are finally over.
This family is finally going to return to a normal life.
Gu Fen
God, how long has he been looking forward to this ordinary, normal life.
As he thought about it, his eyes became moist.
Just as the first batch of SMA children are about to receive treatment.
The news announced by Sanqing has already spread throughout the Internet.
When every media mentioned this matter, they did not hesitate to compare it with three sky-high-priced imported drugs, thus earning enough attention.
"Shocked! Sanqing's innovative gene therapy drugs will stop sky-high-priced imported drugs!"
"Sanqing has the final say on whether a drug costing 14 million per shot can be launched in China!"
"China's first gene therapy drug is available, let's wait and see!"
"Sanqing has sounded the clarion call to conquer rare diseases, and the era of gene therapy has finally arrived!"
This topic quickly became a hot search topic, triggering a new round of heated discussions among netizens.
"Haha, great, Mr. Wei is awesome!"
"This is a major breakthrough for inherited genetic diseases!"
"What great news. I am proud that China has the Sanqing Dynasty! Akimbo.jpg"
"Fourteen million for one shot. When it comes to robbing money, foreigners are better. This is no faster than robbing a bank!"
"Foreigners really rob banks. Didn't you see that every time someone is sanctioned, their bank account property is frozen directly? Haha, are you surprised or not?"
"At least it can be cured, which is a good thing for rich people. The previous injection cost 700,000 yuan and had to be taken for life. It is simply an IQ tax!"
"The 700,000-per-shot group has been suppressed by the centralized procurement of medical insurance. I am so powerful that even capitalists have to bow their heads!"
"That's right, I hope the sales of Sanqing's new drug this time won't be too outrageous, otherwise even the best patients won't be able to afford it."
"Support Sanqing to get rid of sky-high-priced drugs! 14 million per injection is simply outrageous!"
"Tsk, tsk, it is said that this medicine will be launched in China soon. I wonder what kind of people can afford it!"
"The most expensive drug in the world is naturally for capitalists. How can it be used by us cows, horses and leeks? Haha."
"What you said upstairs is wrong. Isn't it costless for pharmaceutical companies to develop new drugs? Do you know how long it takes to develop a new drug? 10 years! The cost of research and development is as high as 1 billion US dollars. Are pharmaceutical companies directly doing charity? If this continues , will anyone develop new drugs? By then all patients will die!"
"That is, without a sky-high price in return, pharmaceutical companies would have no incentive to develop new drugs. Without selling at this price, this drug may not be developed at all, and it may not even benefit a single child."
"Haha, your butts are so crooked. Anyway, the disease has not happened to you. Is Yingguo Pharmaceutical Company your father? Why are you so caring for them?
"That's right, this is not a drug issue at all, it's a class issue. Do you know how serious this disease is? All the sick people are children, and they don't live to go to kindergarten. They are so cruel to charge 14 million for a shot? This is fundamental Not prepared to let poor children live.”
"Fundamentally, sky-high-priced drugs are scientific and technological achievements that belong to all mankind. From a moral point of view, there should be more reasonable pricing so that they can benefit more children with serious diseases."
"That's right, is gene therapy an invention of the pharmaceutical company? Without the research results of scientists, could they develop such a new drug? Standing on the shoulders of giants, we don't want to benefit the public, but we want to benefit the whole world. The world charges sky-high IQ taxes, this is the naked face of capitalist vampires.”
"Yes, just like scientists discovered quantum physics, capitalists used it to study atomic bombs, haha. Now scientists have discovered the existence of human genes and invented gene therapy, and capitalists use it to treat the children of rich people. It's ridiculous. "
It seems natural that good medicines are expensive.
However, the price of 14 million per injection is really staggering, and it deserves the title of the most expensive drug in the world.
In addition, SMA patients are all children, and the fatality and severity of the disease itself will undoubtedly arouse strong sympathy from the public.
In an instant, netizens were quarreling over this topic.
